Posted August 01, 2011
Posted August 01, 2011
Posted August 02, 2011
I have a similar problem, but with my real name. I think it's Finnish (even with all the opposition), but people keep thinking it's Russian of all things (the languages don't sound similar, and it's especially mind boggling when done by Finns). In high school, one of the Finnish teachers asked me "which country are you from" (because of the name and I apparently spoke "too clear Finnish for a Finn"). In middle school a teacher marked my name as incorrectly spelled in an exam (I checked the spelling quite a few times, and I'm sure it was correct, it's my name, I should know). The last time I went to see a doctor, the nurse called for "Gorbachev" (wut, that isn't even similar), and I didn't even realize she meant me before the doctor yelled from the room that "hey, it's not Gorbachev, it's ... you silly nurse!". In the university, there was this one group assignment thing, so I told my group leader that "no one ever gets my name right, try and get it right", after which she assured me that it's an easy name and she wouldn't get it wrong, and right after that she misspelled it (though she only missed by one letter, and she said it was a typo).
..and people look at me funny when I give a "so, 'Ermineforest', y'know, it's the word 'ermine' and 'forest' together, not a mysterious Russian word" speech during introductions.
Posted August 02, 2011
Fuckin hell, I think you win this months 'most fucked up thing' award! Although if you've managed to beat the other 2 life threatening problems you might be immortal but then you have to watch out for people chopping off your head whilst shouting "There can be only one!"
Posted August 02, 2011
Well it may seem trivial to most people but what's worrying me is hair loss(it's of a diffuse kind and I am on medication to treat it)...It's barely noticeable yet but I know how bad it can get. It affects my confidence to a great degree and also because I am popular among women, I am not so sure what I should do....btw I am only 25. Life just throws a 'stinker' at you when things are just stariting get fun...god damned genes.
Post edited August 02, 2011 by Lionel212008
Posted August 02, 2011
Posted August 02, 2011
Yea, I would really like to do that but that look just ain't gonna look so good on me. I am just not one of those people who could pull that off well....Maybe a crew cut would be a better idea or I"ll just wait until my medication kicks in.
Lionel212008: Well it may seem trivial to most people but what's worrying me is hair loss(it's of a diffuse kind and I am on medication to treat it)...It's barely noticeable yet but I know how bad it can get. It affects my confidence to a great degree and also because I am popular among women, I am not so sure what I should do....btw I am only 25. Life just throws a 'stinker' at you when things are just stariting get fun...god damned genes. 
Hawk52: Shave it off. Buy a bitching pair of shades. Perhaps grow a goatee.
Post edited August 02, 2011 by Lionel212008
Posted August 02, 2011
Extracted from the book "Man it up" by Paul O'Donnell
1: No woman will leave you or refuse to sleep with you because your balding.
2: More hair doesnt make you look younger
3: You may get results from Rogaine but eventually your girl WILL find the box
4: Hairpieces and comb-overs make an enemy of many beautiful things in life, like a midnight swim, a summer breeze and fingers through your hair.
5: Clean shaven heads are no longer restricted to Batmans archenemies and circus Strongmen.
6: your hair loss is the result of an excess of testosterone, literally the essence of manliness.
7: Balding men look smarter
8: The balder you are the less prone you are to a bad hair day or hat head.
9: Forty % of men show signs of balding by the age of 35 and 65 % by 65.
10: There are no bald politicians
Make of that what you will :-D
1: No woman will leave you or refuse to sleep with you because your balding.
2: More hair doesnt make you look younger
3: You may get results from Rogaine but eventually your girl WILL find the box
4: Hairpieces and comb-overs make an enemy of many beautiful things in life, like a midnight swim, a summer breeze and fingers through your hair.
5: Clean shaven heads are no longer restricted to Batmans archenemies and circus Strongmen.
6: your hair loss is the result of an excess of testosterone, literally the essence of manliness.
7: Balding men look smarter
8: The balder you are the less prone you are to a bad hair day or hat head.
9: Forty % of men show signs of balding by the age of 35 and 65 % by 65.
10: There are no bald politicians
Make of that what you will :-D
Posted August 02, 2011
That means I have now faced THREE life threatening problems.
TBH I've givin up bitching, whats the point. Somone is clearly out to go me.
It basically develops from the immunospressive drugs you need to take after a transplant. In most cases if it happens, it happens after a couple of years of the transplant. And they now have preventatie drugs patients get immidieatly after the transplant. I got it 14 years after the transplant which is very unusual. Also didn't really know about the condition at the time of my transplant so was no preventative drugs.
I don't need an operation (wish it were that easy, had four major operations so doesn't bother me), being a blood cancer not much to remove. Although I did need to have my spleen removed once it had grown to the size of a rugby ball last year. This seems to be where the Lymphoma originated as I understand it and how it was diagnosed.
I don't intend on ever giving up but this type of Lymphoma is hard to treat. The first type of chemo I had did not work and it is the main treatment for the type of Lymphoma that I have. I have a high level aggressive Lymphoma and when that treatment doesn't work it means it's going to be difficult to cure. The docotors have already discussed with me methods to hold it at bay as long as possible rather than cure it. I'll know in a couple of weeks if it's curable or not.
I have been keeping a blog about it all, and the first post explains my medical history until preent day if anyone is interested
https://hospitalmusings.wordpress.com/2011/06/19/hello/
Post edited August 02, 2011 by FooAtari
Posted August 02, 2011
Nice post reaver894 :)
Lionel212008,
I didn't find the hair loss on my head a bid deal. And it might not all fall out, some people just find it thins a little. It depends on the person and the type of chemo you are receiving. i Mine started to fall out quite heavily so I just shaved it all off before I got to the stage where I looked I was balding.
It also depends what comes out. A shaved head looks fine. I don't particulalry suit it, and I have a huge scar on the side of my head from brain surgery, so I look like a bit of a mentalist. For a start it looks odd simply because you are not used to the look. But you do get used it.
It's your eyebrows/lashes comming out thats worst as that's when you really look ill I'm afriad. But again it doesn't happen to everyone.
And the funny one is when your short and curlies go. Suddenly you look like a 12 year old and have to go through puberty all over again when it starts to grow back!
I'm 30 BTW. My health problems started when I was 16. Sure it's effected my life. I can't drink and things but so what, I still enjoyed my life growing up. I have a lot of baggage these days. Even before the cancer I had to regular hospital appointments, take a lot of tablets etc etc. But I got married just before the problems that led to cancer diagnoses started (got ill on honeymoon and had to come home early) so someone thought I was worth the hassle :) And while obviouslly life would be better without caner, my wife and I have a much stronger relationship because of it
Lionel212008,
I didn't find the hair loss on my head a bid deal. And it might not all fall out, some people just find it thins a little. It depends on the person and the type of chemo you are receiving. i Mine started to fall out quite heavily so I just shaved it all off before I got to the stage where I looked I was balding.
It also depends what comes out. A shaved head looks fine. I don't particulalry suit it, and I have a huge scar on the side of my head from brain surgery, so I look like a bit of a mentalist. For a start it looks odd simply because you are not used to the look. But you do get used it.
It's your eyebrows/lashes comming out thats worst as that's when you really look ill I'm afriad. But again it doesn't happen to everyone.
And the funny one is when your short and curlies go. Suddenly you look like a 12 year old and have to go through puberty all over again when it starts to grow back!
I'm 30 BTW. My health problems started when I was 16. Sure it's effected my life. I can't drink and things but so what, I still enjoyed my life growing up. I have a lot of baggage these days. Even before the cancer I had to regular hospital appointments, take a lot of tablets etc etc. But I got married just before the problems that led to cancer diagnoses started (got ill on honeymoon and had to come home early) so someone thought I was worth the hassle :) And while obviouslly life would be better without caner, my wife and I have a much stronger relationship because of it
Posted August 02, 2011
That means I have now faced THREE life threatening problems.
TBH I've givin up bitching, whats the point. Somone is clearly out to go me.
Don't feel like the type with the hair shaved off, then take a "psyche" attitude course and adjust...
Post edited August 02, 2011 by FiatLux
Posted August 03, 2011
Well here's the problem coz I did ask my girl...She didn't seem all that happy about me shaving my head off. Maybe I am fretting over this a little too much as it's not very noticeable. I"ll get a crew cut though coz it would enable minoxidil to be more effective.....
reaver894: Extracted from the book "Man it up" by Paul O'Donnell
1: No woman will leave you or refuse to sleep with you because your balding.
2: More hair doesnt make you look younger
3: You may get results from Rogaine but eventually your girl WILL find the box
4: Hairpieces and comb-overs make an enemy of many beautiful things in life, like a midnight swim, a summer breeze and fingers through your hair.
5: Clean shaven heads are no longer restricted to Batmans archenemies and circus Strongmen.
6: your hair loss is the result of an excess of testosterone, literally the essence of manliness.
7: Balding men look smarter
8: The balder you are the less prone you are to a bad hair day or hat head.
9: Forty % of men show signs of balding by the age of 35 and 65 % by 65.
10: There are no bald politicians
Make of that what you will :-D I read your post and I think your situation is 'pretty fucked up'....I am not going to say that I understand because that would be pretentious and it is difficult for me to even begin to imagine what you have been through.Don't give up yet though....I really do hope that things better for you .
FooAtari: Nice post reaver894 :)
Lionel212008,
I didn't find the hair loss on my head a bid deal. And it might not all fall out, some people just find it thins a little. It depends on the person and the type of chemo you are receiving. i Mine started to fall out quite heavily so I just shaved it all off before I got to the stage where I looked I was balding.
It also depends what comes out. A shaved head looks fine. I don't particulalry suit it, and I have a huge scar on the side of my head from brain surgery, so I look like a bit of a mentalist. For a start it looks odd simply because you are not used to the look. But you do get used it.
It's your eyebrows/lashes comming out thats worst as that's when you really look ill I'm afriad. But again it doesn't happen to everyone.
And the funny one is when your short and curlies go. Suddenly you look like a 12 year old and have to go through puberty all over again when it starts to grow back!
I'm 30 BTW. My health problems started when I was 16. Sure it's effected my life. I can't drink and things but so what, I still enjoyed my life growing up. I have a lot of baggage these days. Even before the cancer I had to regular hospital appointments, take a lot of tablets etc etc. But I got married just before the problems that led to cancer diagnoses started (got ill on honeymoon and had to come home early) so someone thought I was worth the hassle :) And while obviouslly life would be better without caner, my wife and I have a much stronger relationship because of it
1: No woman will leave you or refuse to sleep with you because your balding.
2: More hair doesnt make you look younger
3: You may get results from Rogaine but eventually your girl WILL find the box
4: Hairpieces and comb-overs make an enemy of many beautiful things in life, like a midnight swim, a summer breeze and fingers through your hair.
5: Clean shaven heads are no longer restricted to Batmans archenemies and circus Strongmen.
6: your hair loss is the result of an excess of testosterone, literally the essence of manliness.
7: Balding men look smarter
8: The balder you are the less prone you are to a bad hair day or hat head.
9: Forty % of men show signs of balding by the age of 35 and 65 % by 65.
10: There are no bald politicians
Make of that what you will :-D
Lionel212008,
I didn't find the hair loss on my head a bid deal. And it might not all fall out, some people just find it thins a little. It depends on the person and the type of chemo you are receiving. i Mine started to fall out quite heavily so I just shaved it all off before I got to the stage where I looked I was balding.
It also depends what comes out. A shaved head looks fine. I don't particulalry suit it, and I have a huge scar on the side of my head from brain surgery, so I look like a bit of a mentalist. For a start it looks odd simply because you are not used to the look. But you do get used it.
It's your eyebrows/lashes comming out thats worst as that's when you really look ill I'm afriad. But again it doesn't happen to everyone.
And the funny one is when your short and curlies go. Suddenly you look like a 12 year old and have to go through puberty all over again when it starts to grow back!
I'm 30 BTW. My health problems started when I was 16. Sure it's effected my life. I can't drink and things but so what, I still enjoyed my life growing up. I have a lot of baggage these days. Even before the cancer I had to regular hospital appointments, take a lot of tablets etc etc. But I got married just before the problems that led to cancer diagnoses started (got ill on honeymoon and had to come home early) so someone thought I was worth the hassle :) And while obviouslly life would be better without caner, my wife and I have a much stronger relationship because of it
Post edited August 03, 2011 by Lionel212008